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Sarcoidosis Educational
Information
The
National Heart, Lung, and Blood Institute (NHLBI) publishes a
comprehensive 16 page booklet entitled 'Facts
About Sarcoidosis' that provides information on symptoms, diagnosis and
treatment. Single copies can be ordered without cost. Visit NHLBI and search for 'sarcoidosis'.
The National Library of Medicine and the National
Institutes of Health offer information for the public on over 650
topics, including sarcoidosis. They additionally offer an
interactive slide-show on the disease. Visit MEDLINEplus - and search for
'sarcoidosis' or follow the link for tutorials to view the slide slow. A medical dictionary is also available.
The 13 March
2002 Patient Page of The Journal of the American Medical Association,
or JAMA, included an article 'Living With Sarcoidosis/Vivir con
Sarcoidosis', that provides people who have sarcoidosis with information on symptoms, diagnosis and treatment. It is
available in both English and Spanish. Visit the
journal site and reference the issue (JAMA.
287(10): 1350.)
Research & Clinical Trials
Through the FSR Website you can find a listing of Clinical Trials that are currently recruiting patients.
ClinicalTrials.gov, a site run by the National
Institutes of Health, provides information about federally and privately
supported clinical research including details about a trial's purpose,
who may participate, locations and contact information. Visit ClinicalTrials.govand
search 'sarcoidosis' to find information on current clinical trials.
The National Heart, Lung, and Blood Institute (NHLBI) also maintains
a database of current trials. Visit their Patient Recruitment Site for more information.
Center Watch - Clinical Trials Listing Service provides information on more than 41,000 active industry and
government-sponsored clinical trials. Visit Center
Watch and search 'sarcoidosis' to find information on current
clinical trials.
Finding a Doctor
The Agency for Healthcare Research and Quality, (AHCPR)
provides helpful information on choosing a doctor in their publication:
'Your Guide to Choosing Quality Health Care: Choosing a Doctor'.
Visit AHCPR for more information. For tips when 'Talking with
Your Doctor' click here.
American Board of Medical Specialties (ABMS)
provides verification of board certification through their Web site,
follow the 'Who's Certified' link or call ABMS toll-free at
1-866-ASK-ABMS. Visit ABMS for more
information.
The National Library of Medicine and the National
Institutes of Health offer an extensive online directory including links
to professional organizations where you can search for general doctors,
specialists and hospitals in your area. Visit MEDLINEplus -
and follow the link for 'Directories'.
Professional Organization Physician Directories:
Scientific Journals
Chest: The Cardiopulmonary and Critical Care Journal is the
official publication of the American College of Chest Physicians (ACCP). This monthly publication features clinical investigations in
the multidisciplinary specialties of chest medicine including
pulmonology, cardiology, thoracic surgery and transplantation. Visit
the ACCP site or
search the journal on-line.
American Journal of Respiratory and Critical Care Medicine, American Journal of Respiratory Cell and Molecular Biology and Proceedings of the American Thoracic Society are official
journals of the American Thoracic Society (ATS). Visit
the ATS site or search ATS journals on-line.
CHID or the Combined Health Information Database is a bibliographic
database produced by health-related agencies of the Federal Government.
This database provides titles, abstracts and availability information
for health information and health education resources. Visit CHID for more information.
Sarcoidosis, Vasculitis & Diffuse Lung Diseases is the official
journal of the World Association of Sarcoidosis and Other
Granulomatous Disorders (WASOG).
In 1999 the American Thoracic Society, the European Respiratory
Society and WASOG collaborated on a joint 'Statement on Sarcoidosis'
that contains detailed information about many aspects of the
disease. Visit the WASOG site.
FSR Hyperlink Standards
The principal intent of the links listed on this
site is that they are educational in nature, targeted toward
professionals or patients and designed for the purpose of
sharing reference information on sarcoidosis. Site content
must be based on peer-reviewed scientifically based research.
Requests for links are evaluated by an internal panel at the Foundation.
For more information, please contact info@stopsarcoidosis.org.
Links are provided as a
convenience to site visitors. Linked
sites are not under the control of FSR and access to any sites linked
from
this web site is at your own risk. FSR assumes no responsibility for, or
any obligation to monitor, the content of such linked Internet sites.
The inclusion of any link does not imply a recommendation or
endorsement by FSR of the linked site.
It is a good idea to compare information found on the
Internet with other sources.
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Confirm that Web sites are maintained by
reputable health organizations.
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If information seems to contradict with your
doctor's advice, talk to your doctor to clarify the differences in
the information.
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Be careful when using information found on
bulletin boards or in 'chat' sessions. Testimonials and personal
stories are based on one person's experience and not necessarily
proven medical research.
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Be suspicious of Web sites advertising or selling
products that claim to improve your health or cure your disease.
Both the Food
& Drug Administration and the Federal Trade Commission offer fact sheets on health fraud
or 'miracle' treatments for chronic illnesses.
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