Meet FSR's 2024 Team Rally for Sarc Runners!
Caeleigh Steier
"It’s a marathon, not a sprint.” A phrase Caeleigh and her husband, Mark, know all too well since Mark was diagnosed with cardiac sarcoidosis. Caeleigh, an avid runner and marathoner, has learned through having a loved one impacted by sarcoidosis that living with a life-altering disease is more than a marathon, rather, a race that lasts a lifetime.
Caeleigh and Mark both have become passionate about using their voice to raise awareness and funds for sarcoidosis. “It would be an honor and a privilege to toe the line for this cause. Afterall, marathons are hard, but living with sarc is harder.”
Calvin Harris
For Calvin, running for the Foundation for Sarcoidosis Research in the 2024 TCS New York City Marathon is more than just a run for him—it’s a personal journey of triumph. As someone living with pulmonary sarcoidosis, it makes every breath a fight to thrive. Running, despite the slower pace that comes from affected lungs, is a huge part of that fight for Calvin.
Calvin proudly serves on the FSR Board of Directors, which has helped him and so many others find their best lives despite being impacted by sarcoidosis. “This marathon is a chance to spotlight sarcoidosis, rallying support for research and for those whose lives are impacted by the disease. Every step I take and every dollar raised brings us closer to a future where sarcoidosis can be effectively treated or even cured.”
Caton Raffensperger
Caton Raffensperger has seen firsthand how sarcoidosis impacts those living with the disease and the affects it has on the individual as well as family and loved ones. Since Caton’s dad was diagnosed with sarcoidosis, she has learned about sarcoidosis and become passionate about being a part of her dad’s journey.
David Land
Since FSR has been a charity partner with the TCS New York City Marathon, it has been Dave’s dream to run for Team Rally for Sarc and participate in the marathon to help raise awareness for sarcoidosis. Dave has seen firsthand how sarcoidosis takes a toll on those it impacts with loved ones including a family and friend being directly affected.
In Dave’s professional life in the medical industry, he works every day to promote an FDA-approved medication to help those living with sarcoidosis get access to treatment they need. He also spends time advocating and raising awareness for sarcoidosis by participating in events to help make a difference for those impacted by sarcoidosis.
Sharon Stevens
As the youngest daughter and child of a parent diagnosed with sarcoidosis Sharon knows all too well the challenges that go along with the complications from sarcoidosis. Seeing her father stand up and not let sarcoidosis consume him; Sharon has followed her father’s mentality of never giving up hope; rather focusing on living life to the fullest even through adversity. Sharon is excited to focus on increasing community awareness and public education on sarcoidosis and truly appreciate the value of the Foundation for Sarcoidosis Research for serving as a beacon of hope for so many.