Disease severity varies widely with spontaneous remission occurring in many, however 30-40% of patients will live the rest of their lives with this chronic, debilitating, and potentially life-threatening disease.

Learn more about the symptoms of sarcoidosis, the organs it can affect, and treatment options.

Sharing your experience with sarcoidosis is not only therapeutic for you, but also helpful for the hundreds of other patients and loved ones who will read it in addition to helping create conversations and raise awareness. By sharing your story openly and honestly, you’ll validate the experience of other sarcoidosis warriors and help them realize they are not alone.

We have three different ways to help you tell your story:

1. If you know what you want to write about or already have something you’re working on, you can submit it as a guest blog.
2. If you’re short on time or you’d like some more guidance on what to write about, you can fill out our survey-style short answer prompts.
3. Or, if you just want to submit a short quote and photo you can do that too!

The FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) is a member program consisting of clinics, hospitals, and individual providers committed to finding a cure and offering evidence-based, patient-centric care for those living with sarcoidosis.

FSR is seeking dynamic, driven individuals impacted by sarcoidosis to apply to become Community Outreach Leaders and Support Group Leaders to work together as part of volunteer teams serving areas close to FSR Global Sarcoidosis Clinics.

Learn more and apply here.

FSR is committed to keeping the memory of those lost sarcoidosis alive.  Please share stories of lost loved one, so the sarcoidosis community can celebrate and remember the spirit of those who have passed on, but will always remain in our hearts. FSR’s Memorial provides a platform to share photos and special memories with friends, family, and the sarcoidosis community and provides an opportunity for loved ones to make special gifts to honor the memory of one who passed too soon.

Click here to celebrate your loved in the FSR Memorial.

Partner with other organizations and companies to maximize your impact together! Many of your favorite stores and companies have ways they give back! Next time you are shopping at your favorite store, meeting with a local business owner in your town, or even dining at a café, ask about how they are supporting the community. It is a great way to begin a conversation about philanthropic initiatives taking place in your town and you may find that these places would be happy to support the sarcoidosis community in future opportunities!