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Act Now to Protect Drug Development

Act Now to Protect Drug Development

Act Now to Protect Drug Development.   As part of the budgeting process, Congress is discussing cutting back the Orphan Drug Tax Credit for pharmaceutical companies. Most of the drugs in sarcoidosis are not FDA-approved for sarcoidosis, but are repurposed from...
It’s All About the Journey

It’s All About the Journey

I have sarcoidosis and am a Patient Advocate.     In the Fall of 2020, I was diagnosed with neurosarcoidosis. The biggest question I struggled with after my diagnosis was, “What do I do now?”. My life was completely upended. I struggled with new treatments...
FSR Update 2022: Omicron, Vaccines, and Boosters

FSR Update 2022: Omicron, Vaccines, and Boosters

What to know about Omicron, the vaccines, the boosters, and staying safe    The Omicron variant of the COVID-19 virus is now the dominant variant in the United States and since December cases have been skyrocketing.      Vaccines and boosters  What makes this variant...
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