Oct 11, 2022
Most of us in our 60’s start looking forward to the day when we are no longer dependent on employer paid health insurance or the marketplace and can go on Medicare. We envision a much simpler process and perhaps, naively, that the focus will be on getting our...Topics: Advocacy/ Living with Sarcoidosis/ Patient Voices/ Take Action
Oct 5, 2022
FSR is proud to announce the launch of the Ignore No More: ACTe Now! (Advance Clinical Trials for Equity in Sarcoidosis) campaign. The goals of this campaign are to increase representation of Black American sarcoidosis patients in clinical trials, raise awareness of...Topics: Advocacy/ News/ Patient Voices/ Research
Sep 30, 2022
“When I was diagnosed in 2014, sarcoidosis was a big word with a lot of scary outcomes (which sometimes still applies, of course). But FSR helped turned my fears into positive actions.”Calvin FSR Patient Advisory Committee and ACTe Now Committee Member, Calvin...Topics: Awareness/ Living with Sarcoidosis/ Patient Voices
Sep 1, 2022
Over the past two years, this Global Pandemic has been changing the way we all exist and go about living our ‘normal’ daily lives – if there is such a thing anymore. Some of these adjustments may be temporary, while some may end up being the way we ‘do business’...Topics: Awareness/ COVID-19/ Living with Sarcoidosis/ Patient Voices