Rare Disease Legislative Advocacy By Jim Kuhn, FSR Patient Advocate, FSR Patient Navigator, and FSR Patient Advisory Committee Member In February 2018, I did my first ever grass-roots lobbying, when my wife and I met with legislative aides of the Congressional...
CHICAGO, Feb. 24, 2021 /PRNewswire/ — The Foundation for Sarcoidosis Research (FSR), the leading international nonprofit organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients, is pleased to announce the appointment...
You are not alone. The journey of sarcoidosis feels lonely sometimes. After months or even years of misdiagnoses, difficulties of excusing yourself from events or activities, confronting challenges associated with going to work each day or caring for your family, and...
Friday, February 19, 2021 West Coast Cardiac Sarcoidosis with Stanford 5-6PM CST (3-4PM PST, 4-5PM MT, 6-7PM EST) Join Doctors Matthew Baker and Ronald Witteles as they share new clinical information and exciting research in cardiac sarcoidosis through the work...
