In August of 2023, the Foundation for Sarcoidosis Research (FSR) submitted a Request for Opinion Letter on Clinical Trials and the Family and Medical Leave Act (FMLA) with the U.S. Department of Labor (DOL). On November 8, 2024, FSR received a letter of clarification...
On October 28, 2024, the Foundation for Sarcoidosis Research (FSR) hosted a groundbreaking Externally Led Patient-Focused Drug Development (EL-PFDD) meeting on sarcoidosis with the U.S. Food and Drug Administration (FDA). This virtual event attracted nearly 350...
“I was diagnosed with Cutaneous Sarcoidosis in July of 2011. When I was diagnosed, I was alone and didn’t know what this disease was much less how to pronounce it correctly, which I’m still working on. Ha. After Googling Sarcoidosis, I was a tad bit scared; I...
These last few weeks have been very rough on me. I feel as if I have been going through both a spiritual and existential crisis. Sarcoidosis has completely shifted and changed my life and how I view and live in this world. The word “silence” has been both...
