Dec 2, 2024
The Foundation for Sarcoidosis Research (FSR) is proud to announce the recipients of the 2024 FSR Cardiac Sarcoidosis Grant, providing $200,000 in funding to advance groundbreaking research aimed at improving the diagnosis, management, and treatment of cardiac...Topics: Awareness/ News/ Research
Nov 18, 2024
In August of 2023, the Foundation for Sarcoidosis Research (FSR) submitted a Request for Opinion Letter on Clinical Trials and the Family and Medical Leave Act (FMLA) with the U.S. Department of Labor (DOL). On November 8, 2024, FSR received a letter of clarification...Topics: Advocacy/ Living with Sarcoidosis/ News/ Research
Oct 31, 2024
On October 28, 2024, the Foundation for Sarcoidosis Research (FSR) hosted a groundbreaking Externally Led Patient-Focused Drug Development (EL-PFDD) meeting on sarcoidosis with the U.S. Food and Drug Administration (FDA). This virtual event attracted nearly 350...Topics: Advocacy/ Awareness/ Patient Voices/ Take Action
Oct 25, 2024
“I was diagnosed with Cutaneous Sarcoidosis in July of 2011. When I was diagnosed, I was alone and didn’t know what this disease was much less how to pronounce it correctly, which I’m still working on. Ha. After Googling Sarcoidosis, I was a tad bit scared; I...Topics: Living with Sarcoidosis/ Patient Voices
