Blog
Patient Ambassador Advocates for In-District Lobby Days
During the month of August, while congress members were back in their local districts, Rare Disease Legislative Advocates organized their annual “In-District Lobby Days,” helping rare disease patients connect with their local representatives to meet and...
The June JAMR Memorial Ride was a Success!
Every year in June, the friends and family of the late Jerry Mac Grimes (1946-2014) get together for the June JAMR, a motorcycle ride held in Jerry’s memory. This event is not only a chance for the community to congregate and remember Jerry through one of his...