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Share Your Story, Protect Your Healthcare Coverage

Share Your Story, Protect Your Healthcare Coverage

The National Organization for Rare Disorders is starting a patient-driven campaign to highlight the significant impact that the Affordable Care Act has had on patients with rare and chronic diseases. Some noticeable changes for these patients was prohibiting...

Join the Team: Ideas for Fundraising

As a small nonprofit, FSR relies on independent fundraising from generous supporters like you. Independent events have consistently contributed toward FSR’s mission to fund critical sarcoidosis research projects and programs that improve education and care for sarc...
Healthcare Innovation Under the New Administration

Healthcare Innovation Under the New Administration

With the upcoming inauguration of the 45th President of the United States, the country is preparing for big changes, especially when it comes to healthcare. The potential repeal of the Affordable Care Act threatens some provisions for chronic and rare disease patients. For example, the ACA prohibited insurance companies from setting lifetime caps on medical expenses …

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