May 20, 2024
The Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients, takes a bold step forward in addressing health disparities by announcing the launch of the...Topics: Advocacy/ Awareness/ Community Partners/ News/ Research
Apr 17, 2024
Beginning April 15th, Walgreens, a pharmacy and retail leader who plays a critical role in the U.S. healthcare system by providing a wide range of pharmacy and healthcare services, including those that drive equitable access to care for the nation’s medically...Topics: Awareness/ Community Partners/ News
Mar 27, 2024
26 Patient Volunteer Leaders representing 16 states and 17 hospitals joined the Foundation for Sarcoidosis Research (FSR) at the inaugural FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) Volunteer Patient Leadership Advanced Training Conference held at Cleveland...Topics: Community Partners/ FSR Events/ News/ Patient Voices
Nov 2, 2023
Foundation for Sarcoidosis Research (FSR) announces three clinics that have been selected as members of FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) – a groundbreaking initiative that will have a worldwide impact on advancing sarcoidosis research and improving...Topics: Community Partners/ News/ Research
Sep 15, 2023
Beginning September 16th, Walgreens, a pharmacy and retail leader who plays a critical role in the U.S. healthcare system by providing a wide range of pharmacy and healthcare services, including those that drive equitable access to care for the nation’s medically...Topics: Advocacy/ Awareness/ Community Partners/ COVID-19/ Living with Sarcoidosis/ News
Jul 13, 2023
The Foundation for Sarcoidosis Research (FSR) is pleased to announce the appointment of Calvin Harris Jr., CPA and Joel D. Rosen, Esq. to the FSR Board of Directors. “We are thrilled to welcome Calvin and Joel to the FSR Board of Directors,” said Dr....Topics: Community Partners/ News/ Other
Apr 26, 2023
Recently, we asked our dedicated and generous Sarcoidosis Awareness Campaign Gold Level Sponsor, aTyr Pharma, Inc., to share more about their passion for raising awareness and improving the lives of those impacted by sarcoidosis. Check out how they are accelerating...Topics: Awareness/ Community Partners/ Research
Jul 18, 2022
On April 21, 2022, The Foundation for Sarcoidosis Research (FSR) hosted a virtual Patient Listening Session on Pulmonary Sarcoidosis with the US Food and Drug Administration (FDA). FDA Patient Listening Sessions are small, informal, non-regulatory, non-public...Topics: Advocacy/ Community Partners/ News/ Other/ Patient Voices
Nov 3, 2021
We are proud to announce that they have been selected as an awardee for the Chan Zuckerberg Initiative (CZI) Rare As One Cycle 2 grant which will provide $600,000 to improve diagnostics and increase research in sarcoidosis. This work is part of CZI’s Rare...Topics: Advocacy/ Community Partners/ News
Sep 15, 2021
My journey with Interstitial Lung Disease (ILD) started about 15 years ago, although I did not know it at the time, nor did the physicians who were then treating me. At an annual physical, at the age of 46, I mentioned that my knees were a bit sore after physical...Topics: Advocacy/ Community Partners/ Living with Sarcoidosis/ Patient Voices
