Are you thinking about participating in a clinical trial? Here are 6 things you should know! Clinical trials can be an intimidating and unexplored area for many people. Some may have been exposed to the basic principles of research methods in school, while others may...
With more than 250,000 Americans living with interstitial lung disease (ILD) and pulmonary fibrosis (PF), nine organizations are joining forces to present the third annual ILD Day on Wednesday, Sept. 13, to drive awareness of the diseases. ILD is the umbrella term...
Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to elevating research, raising awareness and providing support for individuals affected by sarcoidosis, is proud to announce the release of the Ignore No More Campaign on...
FSR is proud to bring together sarcoidosis patients, caregivers, and family and friends at the Third Annual Global Virtual Patient Summit: Unveiling Possibilities. This summit is the world’s largest virtual sarcoidosis patient event. This year’s summit...
You may have a lot of questions about sarcoidosis, especially if you are newly diagnosed. And other times, you may not know what to ask your sarcoidosis specialist, especially in the moment. We recommend jotting down a few notes ahead of time to bring with you...
In September 2021, an article entitled “Challenges of Sarcoidosis and Its Management” (Drent et al., 2021) was published in the prestigious New England Journal of Medicine. This article, written by two active members on FSR’s Scientific Advisory Board, Marjolein...
FSR Sarcoidosis Support Group In response to feedback received in 2021 and a growing need to support patients where they are, FSR has launched an online peer-led support group for people living with sarcoidosis. While 2024 will bring additional, more localized...
Click here to register now! Join us for this year’s Virtual Patient Education Summit, June 12-13, 2021! Our summits in September and November of 2020 were incredibly successful. This year we will be offering a unique two-day experience on a fun, interactive...
As the holidays approach in what has been a uniquely challenging year, FSR is excited to support sarcoidosis warriors and their care partners through a Mindfulness and Meditation Workshop Series. Lead by Susan D’Agostino, a sarcoidosis warrior certified in mindfulness...
Right now, the world can feeling more isolating than ever. With the COVID-19 pandemic bringing much our our usual summer activities to a grinding halt, the rest of the world now has a glimpse into the feelings of isolation that can be so common in the lives of those...