Cardiac sarcoidosis is a topic that is growing in popularity both in research and among patients. New research is being published every week on the topic, and thanks to increased awareness and screening procedures, more patients and physicians are aware of the risk...
On September 11, 2001, life for Americans was forever changed. After the attacks on the World Trade Center, countless men and women sprung into action and selflessly risked their lives for rescue and recovery missions and to help clear the debris. These selfless first...
Finding out you have a rare and chronic illness can be extremely hard to deal with. Building a strong support system of loved ones can help make the journey easier. However, it can be extremely difficult to talk about your illness with your loved ones. Here are a few...
When referring to the “stages” of sarcoidosis, this is referring exclusively to pulmonary sarcoidosis. The stages of pulmonary sarcoidosis should also not be mistaken to indicate the progression of the disease- the “stages” are simply a way...
Summer officially starts June 20th! It’s time for backyard barbecues, time with friends and family, and some fun in the sun. There’s no better time to join Team KISS! This summer, sarc warriors and their families are getting together to raise awareness and...
Gretchen Denney developed some strange symptoms around the time she was pregnant with her two children. After the birth of her first child, her daughter, Gretchen noticed an annoying and unexplained rash on her legs. A few years later, pregnant with her second child,...
Firefighters and first responders seem to be at a higher risk of developing sarcoidosis. While this has been a theory by many over the years, like every other aspect of sarcoidosis, research was lacking. As a disease that commonly affects the lungs and shows a...
Health insurance can be complicated, especially if you have a rare or chronic disease. Figuring out if and how you can see a certain specialist or how to afford expensive drug therapies can be exhausting,and understanding insurance lingo can feel like learning a...
FSR is proud to have partnered with the University of Pennsylvania and Penn Medicine to help share a new mobile app for sarcoidosis patients which allows patients to track their symptoms, disease activity and impact, and other quality of life measures, using their...
Dr. Lesley Ann Saketkoo, MD, MPH, Associate Professor of Medicine at Tulane University and a strong believer in the power of mindfulness in overcoming chronic illness, shared some helpful tips for patients to increase mental and physical strength to combat illness....
