Category: News
Meet Your 2019 Patient Ambassadors!
Every year since 2016 FSR has assembled a group of highly dedicated patients to serve as FSR Patient Ambassadors. This group of patients serve as local resources for sarcoidosis patients, advocate for awareness in their communities and to their state legislators, and...
FSR Featured in NBC Chicago Sarcoidosis Segment
This April for Sarcoidosis Awareness Month, our friends at NBC Chicago are helping shine a light on sarcoidosis. Check out this awesome interview with FSR’s Director of Research Programs, Noopur Singh, as well as Chicago-area physician Dr. Peter Sporn and local...
Shifting the Conversation: Advanced Sarcoidosis
Why have we become complacent with the perception that all cases of sarcoidosis resolve?
FSR and the Global Genes Foundation Alliance Leadership Council
FSR is excited to announce that our Executive Director, Ginger Spitzer, is now on the Global Genes Foundation Alliance Leadership Council!
Sarcoidosis PSA Will Air in 10 Major US Cities on NBC
Last year, NBC helped us raise awareness about sarcoidosis during April by showing a 30-second PSA regularly in 9 major US cities throughout the month for Sarcoidosis Awareness Month. This year, they’re recommitting to raising awareness, and we’re thrilled...
Patient Survey Leads to New Treatment Guidelines
Early last year, we asked our community to tell us which treatment outcomes are most important to sarcoidosis patients. You and hundreds of other patients around the world responded! The survey, developed by a European Respiratory Society (ERS) working group which...
New Clinical Trial Opportunity in Gainesville, FL!
Diagnosed sarcoidosis patients in the Florida and Georgia regions are encouraged to participate in a new Clinical Trial Opportunity with the University of Florida in Gainesville! The purpose of this study is to investigate fibrocytes, specific cells in the blood which...
PRESS RELEASE: aTyr Pharma announces pulmonary sarcoidosis trial in collaboration with FSR
aTyr Pharma Announces Initiation of Phase 1b/2a Study of ATYR1923 in Patients with Pulmonary Sarcoidosis and Collaboration with the Foundation for Sarcoidosis Research (FSR) FSR Clinical Studies Network to assist with clinical site initiation to expedite...