Application Cycle for 2019-20 Patient Ambassador Program Term Now Open!
We are thrilled to announce that applications are now being accepted for the 2019-2020 term of the FSR Patient Ambassador Program.
Category: News
Clinical Studies Network (2019 Update)
In 2019 the Clinical Studies Network (CSN) will conduct a study focused on cardiac sarcoidosis at all 12 of our sites.
Registration Open for Early 2019 Patient Conferences!
Registration is now open for the first FSR Patient Conferences of 2019! Whether you are newly diagnosed or have had sarcoidosis for many years, FSR Patient Conferences are a great way to learn about the disease and become connected with others that are dealing with...
FSR Attends Hill Day
On Oct. 2nd and 3rd FSR’s Executive Director, Ginger Spitzer, was able to travel with PAR to Washington D.C for ATS Hill Day.
FSR Hosts Clinical Studies Network Meeting in Chicago
The members of the FSR Clinical Studies Network met on June 29th in Chicago, Illinois to determine and plan the next CSN Core Study as well as identify opportunities for additional Elective Studies via industry. Members traveled from all across the US, as well as...
Penn Medicine’s Sarcoidosis App Now on Android!
We received a great deal of feedback asking when the app would be available on android devices. It has always been our goal to have the app available to everyone to give equal access to these sarcoidosis resources, as well as to help sarcoidosis researchers obtain the...
Team KISS photos!
We’re excited to share some of the photos from our official Team KISS 5K in Atlanta, GA this year! Thanks to all the super runners and walkers who came out to join...
Team KISS’s April Success!
Team KISS was in full swing this April! Big thanks to all of our Team KISS superheroes who kicked in for Sarcoidosis Awareness Month! Our annual walk event was based in Atlanta, GA, but we were joined by a record-breaking number of walkers in person as well as...
2018 Proclamation Successes!
This year with the help of awesome sarcoidosis warriors all across the US, we were able to obtain at least 28 state level proclamations designating April as Sarcoidosis Awareness Month, as well as at least 12 local proclamations as well! Learn more about proclamations...