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Category: News

Faces of Sarcoidosis Billboard in Times Square!

Faces of Sarcoidosis Billboard in Times Square!

This year, as part of our #SarcoidStories campaign during Sarcoidosis Awareness Month, FSR will have a billboard in Times Square. The billboard in the heart of New York City will be up from March-May 2018 and will bring more awareness about sarcoidosis to the general...
FSR Awards $1,000,000 to Advance Training of 4 Sarcoidosis Fellows

FSR Awards $1,000,000 to Advance Training of 4 Sarcoidosis Fellows

FSR launched its Clinical and Research Fellowship Program in Fall 2017. With a total of $1,000,000 awarded this year for four fellowships, this is a first of its kind within the sarcoidosis space. These four awards, providing two-year, $250,000 each in funding, are...
Apply to be an FSR Ambassador TODAY!

Apply to be an FSR Ambassador TODAY!

We’re still accepting applications for 2018 FSR Patient Ambassadors!Our goal is to have an Ambassador in every state this year and we are still looking for candidates for the states listed below! Training will be held in Washington, DC on February 25-26. Email...
Take Care of Yourself in 2018: Join a Support Group!

Take Care of Yourself in 2018: Join a Support Group!

It’s a new year and if you don’t already, it’s time to start prioritizing your self-care. If you’ve been considering reaching out to other sarc warriors or loved ones for support, there’s no better time than now. In-person support group...
A Year in Review: FSR’s Research Initiatives

A Year in Review: FSR’s Research Initiatives

This year, FSR made some huge progress on our research agenda. This coming year promises to build on that progress, with new developments on several major projects that will lead to better understanding of the disease and therapies, more interest on the part of young...
Your Holiday Shopping Could Help FSR!

Your Holiday Shopping Could Help FSR!

It’s that time of year again- no matter what holidays you celebrate, it’s the season for giving and everyone’s stocking up on gifts for friends, family, and themselves too. If you’re shopping for any of these gifts online, did you know that you...
Our Online Support Group Hit 40,000 Members!

Our Online Support Group Hit 40,000 Members!

Our online support community has continued to grow over the past few years, reaching 40,000 online members this month! The Stop Sarcoidosis support community is hosted on the platform Inspire, which provides a space for online support communities that allow patients...
Tips on Your Year-End Charitable Gift

Tips on Your Year-End Charitable Gift

Now that it’s December, it’s high time to think about your year-end charitable gifts—and to make sure that you time them to your best advantage. The end of the year is the most popular time for charitable gifts partly because it’s the “giving season” and a great...
FSR Represented at ATS Public Advisory Roundtable

FSR Represented at ATS Public Advisory Roundtable

FSR Executive Director Ginger Spitzer attended the 2017 ATS Public Advisory Roundtable Planning Meeting on Nov 17-18 in Miami. Our membership in PAR allows FSR to continue our work toward advocating for patients and ensuring the patient perspective into clinical and...
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