Sarcoidosis patient and FSR Board of Directors member Karen Duffy has published her second book full of wit and wisdom on living with chronic illness. “Backbone: Living with Chronic Pain without Turning into One” is currently the #1 Best Seller in the...
The Forum of International Respiratory Societies (FIRS) has created a charter to recognize September 25th as World Lung Day. The purpose of the charter is to draw attention to the global issue of respiratory health and the increasing challenges that individuals with...
The application for this grant period is now closed. Learn more about the CSN. The FSR-CSN is a collaborative network of sites facilitating multi-site trials and studies in sarcoidosis research. The Network is focused on highly innovative projects with the intent of...
The Foundation for Sarcoidosis Research recently signed two petitions to show our support for important polices that directly impact many sarcoidosis patients. FSR makes sure to stay informed on policies that will affect the rare disease community and our patient...
Last week, the FSR staff enjoyed a visit from our Co-Founders Andrea and Reading Wilson, as well as Board of Directors Member Louise Perkins. The three board members joined staff for a strategic planning session focusing on the organization’s growth and...
FSR is excited to share some breaking news from the world of rare disease research that could have a huge impact on the future of diagnosing and treating rare diseases worldwide. The International Rare Diseases Research Consortium (IRDiRC) has released an ambitious...
Tracking your fitness may be a way to help manage symptoms and side effects for sarcoidosis patients. As many sarc warriors know, it can be extremely difficult to stay active when you’re living with sarc. Between the chronic pain, fatigue, shortness of breath,...
The first ever meeting of the FDA’s new Patient Engagement Advisory Council (PEAC) will be this fall, as they host their first open forum focusing on the topic of clinical trials. This council came about due to legislation passed in 2012 that required the FDA to...
The Foundation for Sarcoidosis Research prioritizes the long-term care of sarcoidosis patients and supports healthcare legislation that acknowledges and protects the needs of our community. As such, we feel compelled to voice our concern when pending legislation could...
The Foundation for Sarcoidosis Research is sharing this urgent call to action from the National Organization for Rare Disorders (NORD): WE NEED YOU to call, email, tweet, and message your Senators… Urge them to stand up for the millions of children and adults...
