Category: News
2020 Education Summits Transition to Virtual Format
FSR has made the decision to transition our in-person Patient Education Summits to be Virtual Summits. This decision was made due to the ongoing challenges of the COVID-19 pandemic in order to be proactive about the health and comfort of our community. While we are...
Meet FSR’s Founders the Wilsons!
As part of FSR’s 20th Anniversary, we’re profiling some of the people who make everything we do at FSR possible, including our co-founders, Board of Directors, and staff. First up, meet our co-founders, the Wilsons! Andrea Wilson is a sarcoidosis warrior...
Initial Results of Sarcoidosis and COVID-19 Impact Survey
COVID-19 has changed our world. As of April 27, 2020, the Johns Hopkins University Coronavirus Resource Center reported over 3 million individuals worldwide have been infected with COVID-19, including 979,077 in the United States. There are about 200,000 individuals...
FSR Seeks Organization’s First Ever Chief Executive Officer
FSR is now looking to hire the first Chief Executive Officer (CEO) to advance the mission to fund sarcoidosis research and improve the lives of patients worldwide. The CEO will be responsible for overseeing the execution of FSR’s strategic plan, administration,...
Memorial Monday: A Day to Honor Those Gone Too Soon
On Monday, April 27,2020, the sarcoidosis community will be honoring the lives of the sarcoidosis warriors that were lost too soon. Memorial Monday is a day that reminds our community why it is important that the fight to stop sarcoidosis must prevail. To pay tribute...
NORD offers financial assistance to rare community for COVID-19
FSR is a proud member of NORD, the National Organization for Rare Disorders. On April 15th, NORD announced the creation of a program to provide financial assistance for members of the rare disease community who have been impacted by COVID-19. Read the release below or...
WEBINAR: A Rare Response: Addressing the COVID-19 Pandemic
FSR is a proud member of the National Organization for Rare Disorders, or NORD. Our friends at NORD are hosting an informational webinar about rare disease patients and the COVID-19 pandemic.A Rare Response: Addressing the Covid 19 PandemicTuesday, March 31, 20202:00...
RESCHEDULED: Chicago Patient Summit
FSR is announcing the postponement and rescheduling of our Chicago Patient Summit that was initially scheduled for April 3-5, 2020 in Chicago, IL. The event has been rescheduled for August 30 – September 1, 2020.
