The Foundation for Sarcoidosis Research (FSR), the leading international nonprofit organization dedicated to finding a cure and improving care for sarcoidosis patients, conducted a two-day training of patient volunteer leaders to collaborate with and support the FSR...
It’s easy to set hard caps on paper about how many pills a doctor can prescribe. It’s a lot harder to address the constellation of issues that lead people to illegally buy and use narcotics. The two aren’t necessarily linked, but we continue to behave as if they are....
I had a dripping faucet in my home that was repaired recently. This annoyance somehow made me think about sarcoidosis and how it is much like a dripping faucet, except for one annoying fact that sarcoidosis cannot be repaired. Strangely comical how a dripping...
Darlene Anita Scott is a writer and visual artist living with sarcoidosis. She applied to become an FSR Global Sarcoidosis Clinic Alliance (GSCA) Community Outreach Leader and is dedicated to sharing her sarcoidosis story with the public to raise awareness and help...
“My hope is that this campaign will greatly increase awareness of sarcoidosis and encourage Black patients to participate in clinical trials. That will ultimately improve our lives and benefit everyone in the sarcoidosis community.” Calvin Harris FSR Patient...
Most of us in our 60’s start looking forward to the day when we are no longer dependent on employer paid health insurance or the marketplace and can go on Medicare. We envision a much simpler process and perhaps, naively, that the focus will be on getting our...
FSR is proud to announce the launch of the Ignore No More: ACTe Now! (Advance Clinical Trials for Equity in Sarcoidosis) campaign. The goals of this campaign are to increase representation of Black American sarcoidosis patients in clinical trials, raise awareness of...
“When I was diagnosed in 2014, sarcoidosis was a big word with a lot of scary outcomes (which sometimes still applies, of course). But FSR helped turned my fears into positive actions.”Calvin FSR Patient Advisory Committee and ACTe Now Committee Member, Calvin...
Over the past two years, this Global Pandemic has been changing the way we all exist and go about living our ‘normal’ daily lives – if there is such a thing anymore. Some of these adjustments may be temporary, while some may end up being the way we ‘do business’...
On April 21, 2022, The Foundation for Sarcoidosis Research (FSR) hosted a virtual Patient Listening Session on Pulmonary Sarcoidosis with the US Food and Drug Administration (FDA). FDA Patient Listening Sessions are small, informal, non-regulatory, non-public...
