Allison Hawley- like so many other sarcoidosis patients- has had a tough time getting a diagnosis. Her journey has been filled with misdiagnoses, complicated tests and procedures, and doctors scratching their heads. Allison attended the FSR Patient Conference in...
Gretchen Denney developed some strange symptoms around the time she was pregnant with her two children. After the birth of her first child, her daughter, Gretchen noticed an annoying and unexplained rash on her legs. A few years later, pregnant with her second child,...
Firefighters and first responders seem to be at a higher risk of developing sarcoidosis. While this has been a theory by many over the years, like every other aspect of sarcoidosis, research was lacking. As a disease that commonly affects the lungs and shows a...
U.S. Senate Democratic Leader Charles E. Schumer, with Kerry in the background Senator Debbie Stabenow (MI) FSR Patient Ambassador Kerry was in Washington, D.C. last month attending a press conference held by Senate Democrats. The press conference focused on pending...
Perry and Melissa Enyedi are an Ontario couple hosting an independent K.I.S.S. walk in Brantford, ON this Saturday. While sarcoidosis is a rare disease, their family has had more than their fair share of experience with the disease- both Perry and Melissa’s...
The first Wednesday in April is National Walking Day! Bob Owens used to be a first responder, where being in good physical shape is just part of the job. When he stopped working, Bob found it was exceedingly difficult to stay in shape. His weak lungs and chronic...
FSR supporter and Patient Ambassador Mary McGonagle is currently leading the way for Team K.I.S.S. virtual walks and fundraising efforts. Her walk in memory of her husband, PJ McGonagle, already has nearly 30 people registered, with more than two months until the walk...
It was 1976 and Theresa Michelle— a newlywed working at the Department of Justice in Washington D.C.—was having trouble holding on to heavy pots and pans. She was soon diagnosed with rheumatoid arthritis, but couldn’t have imagined the two decades of health troubles...
FSR recently reached out to members of our online community to ask if they felt that poor air quality, industrial pollution, or any other environmental triggers have caused a flare up or even the development of their sarcoidosis. The post generated an overwhelming...
It isn’t easy staying fit when you have a chronic illness. Our conditions can be an incubator for excuses. We all have bad days, pain spikes and our disease affects our respiratory system and our joints. My doctors have told me I should NOT go to the gym or take yoga...
