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Category: Research

A Year in Review: FSR’s Research Initiatives

A Year in Review: FSR’s Research Initiatives

This year, FSR made some huge progress on our research agenda. This coming year promises to build on that progress, with new developments on several major projects that will lead to better understanding of the disease and therapies, more interest on the part of young...
PRESS RELEASE: OPIOID EPIDEMIC Impacts Patients suffering from Orphan Disease of Sarcoidosis

Phase 1 Trial for New ILD Therapy Begins

The following is an excerpt from a press release by aTyr Pharma, Inc detailing their new study focusing on a potential therapy for treating interstitial lung diseases: SAN DIEGO, Nov. 27, 2017 (GLOBE NEWSWIRE) — aTyr Pharma, Inc. (Nasdaq:LIFE), a biotherapeutics...

Rare Disease Research Consortium Announces Ambitious Goals

FSR is excited to share some breaking news from the world of rare disease research that could have a huge impact on the future of diagnosing and treating rare diseases worldwide. The International Rare Diseases Research Consortium (IRDiRC) has released an ambitious...
Can Tracking Fitness Help Sarcoidosis Patients?

Can Tracking Fitness Help Sarcoidosis Patients?

Tracking your fitness may be a way to help manage symptoms and side effects for sarcoidosis patients. As many sarc warriors know, it can be extremely difficult to stay active when you’re living with sarc. Between the chronic pain, fatigue, shortness of breath,...
Do You Know About Your Health Data?

Do You Know About Your Health Data?

Did you know, you have access to all of your health data online? 41% of Americans have never taken advantage of their ability to see this information, and 27% reported not even being aware they had the right to! We invite you to learn more about FasterCures’ new...
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