Category: Take Action
7 Ways to Give Back this Holiday Season!
This holiday season give back and lend a hand in the fight against sarcoidosis. Learn some fun ways to give back this year!
2019 Healthcare Open Enrollment: Closing Soon!
The 2019 Healthcare Open Enrollment Period for the Affordable Care Act closes Dec. 15th! Learn about your options and how to apply here!
Orphan Drug Act: Celebrating 35 Years
The Orphan Drug Act has been helping sarcoidosis patients receive better treatment options for the last 35 years. Help us ensure its future!
Application Cycle for 2019-20 Patient Ambassador Program Term Now Open!
We are thrilled to announce that applications are now being accepted for the 2019-2020 term of the FSR Patient Ambassador Program.
What is an FSR Patient Ambassador?
All of our patients ambassadors have a different experience and a different reason for becoming an ambassador. Find out in their own words what our patients ambassadors do and why they became involved with this program.
Want to Make an Impact This Summer? Join Team KISS!
Summer isn’t over which means now is the perfect time to soak up the extra sunlight and mild weather while you fundraise with Team KISS!
Will You Help Us Find a Cure for Sarcoidosis?
FSR strives to bring patients the most up-to-date information about sarcoidosis, but we can’t do that without you. Besides being a rare disease, affecting only 200,000 people in the U.S., sarcoidosis is commonly misdiagnosed. The limited data that does exist doesn’t...
Become a Sarcoidosis Advocate in Your Hometown!
Rare disease patients find out soon after a diagnosis that they’ll have to learn advocate for themselves- in the doctors office, to insurance companies, and even to the government. Unfortunately, rare diseases are still often overlooked in legislation, even though...