FSR is excited to share that we’ll be moving the FSR-SARC Patient Registry to a new platform over the next few months! The platform will add some new features that we hope you’ll enjoy, and it will enable FSR to maximize the impact of the program.
Click here to sign up and be notified when the new version is ready.
FSR created the FSR-Sarc Patient Registry to capture the patient experience, improve understanding of sarcoidosis’s impact on patient lives, assess how sarcoidosis is impacting a patients’ quality of life, and to provide a deeper understanding of the social and economic burden of the disease
"Please take the time to join the registry to help accelerate research. It’s simple and your contribution is needed."
– Jessica, Person living with sarcoidosis
Leave Your Mark on Sarc
Watch the FSR Patient Registry Webinar - The Future of Sarcoidosis Research is in Our Hands
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"FSR created the Patient Registry to share information with other sarcoidosis patients as well as clinicians and researchers. I joined the Patient Registry in 2021 because my sister died of sarcoidosis. My sister’s disease journey shouldn’t die with her. I want to understand why my disease journey was so different from hers and what started our journey in the first place. The Registry was so easy to complete, that I don’t remember what I did to enroll."
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This page made possible by a grant from The Gies Foundation