Stay up-to-date on FSR’s latest activities and learn about the ways that FSR is driving progress and accelerating research towards a cure.
FSR launched the Ignore No More: ACTe Now! Campaign (Advance Clinical Trials for Equity in Sarcoidosis) to address the underrepresentation of Black Americans in clinical trials. As part of the campaign, FSR conducted the first of its kind, IRB-approved national patient survey for Black Americans to better understand the challenges and experiences Black Americans with sarcoidosis face as it pertains to clinical trials and their disease journeys. FSR also conducted a Key Opinion Leaders Thought Workshop (KOL) and Patient Focus Group to explore the findings in greater depth and to identify recommendations for how to improve clinical trial access and overall care of Black sarcoidosis patients.
Some recommendations that emerged include building a blueprint for clinical trial design that increases access and supports diversity, clinical trial navigation and support specifically targeted for Black patients, and educational toolkits to better educate patients and physicians about trial opportunities and engagement. Though this campaign was specific to Black Americans with sarcoidosis the learnings are relevant to improving access to clinical trials for all Black Americans.
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FSR Blog
FSR Seeks Organization’s First Ever Chief Executive Officer
FSR is now looking to hire the first Chief Executive Officer (CEO) to advance the mission to fund sarcoidosis research and improve the livesLearn More
SAVE THE DATE: #GivingTuesdayNow on May 5th, 2020
The global coronavirus pandemic has affected nearly everyone around the world – including our family here at the Foundation for Sarcoidosis Research. Our missionLearn More
Memorial Monday: A Day to Honor Those Gone Too Soon
On Monday, April 27,2020, the sarcoidosis community will be honoring the lives of the sarcoidosis warriors that were lost too soon. Memorial Monday isLearn More
NORD offers financial assistance to rare community for COVID-19
FSR is a proud member of NORD, the National Organization for Rare Disorders. On April 15th, NORD announced the creation of a program toLearn More
American Lung Association and Foundation for Sarcoidosis Research Join Forces to Raise Awareness of Sarcoidosis
Providing answers and education during Sarcoidosis Awareness Month is more important than ever in the face of the COVID-19 pandemic CHICAGO (April 1, 2020)Learn More
POSTPONED: Team KISS 5K
FSR is announcing the postponement of the Team KISS 5K – both San Diego and Virtual Walk – that were planned for April 18,Learn More
RESCHEDULED: Chicago Patient Summit
FSR is announcing the postponement and rescheduling of our Chicago Patient Summit that was initially scheduled for April 3-5, 2020 in Chicago, IL. The event has been rescheduled for August 30 – September 1, 2020.
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