Aug 2, 2023
…aimed at delivering different ideologies and perspectives. Find Your Physician Community – Lost in Translation: A discussion about communicating with your healthcare team Find Your First Responder Community (Military…
Sep 17, 2020
Introducing: FSR Patient Advisory Committee The FSR Patient Advisory Committee (PAC) was created out of a need to identify and fill gaps in the FSR patient community in relation to…
Article
May 20, 2019
…are a highly complex and well-oiled part of medical science, serving as a critical component in drug development. Clinical trials are central to advancements in clinical care and medicine, and…
Topics: Research
Article
Dec 17, 2020
…visit www.xentria.com 1 “Designating an Orphan Product: Drugs and Biological Products.” US Food and Drug Administration. https://www.fda.gov/industry/developing-products-rare-diseases-conditions/designating-orphan-product-drugs-and-biological-products Published February 16, 2018. Accessed December 10, 2020. 2 “FDA at Rare Disease…
Topics: Community Partners/ Research
Article
Sep 11, 2019
…you to this day. For more information on current advocacy efforts and how you can help make sure our heroes get the care they need and deserve: www.superheroyou.com/9-11-charities/ www.911day.org/ http://www.survivorsnet.org/resources_other.html…
Topics: News
Jan 18, 2017
…career to improving the lives of those with complex chronic illness and rare diseases. Tricha has served patients in her roles with the Washington Regional Transplant Community, The Muscular Dystrophy…
Aug 28, 2023
FSR Community Engagement Commission Raising awareness for sarcoidosis among community groups, healthcare providers and individuals. The Foundation for Sarcoidosis Research (FSR) is proud to share that they are utilizing the…
Article
Sep 6, 2019
…where your friends and loved ones come in. For more tips on working full-time with a chronic illness, check out this article from The Mighty. Resources https://www.health.com/health/gallery/0,,20654489,00.html?slide=85971#85971 https://www.phillyemploymentlawyer.com/boss-can-cant-ask-health/ http://workplacementalhealth.org/Mental-Health-Topics/Employee-Assistance-Programs https://themighty.com/2018/06/managing-pain-at-work/…
Topics: Living with Sarcoidosis
Aug 12, 2022
…Community Groups are assigned two co-leaders, when possible, in support of workload dissemination, as well as illness or vacation coverage. Alliance Community Group Leaders should have excellent communication and active…
Nov 10, 2022
…FSR provides us a community in which we can come together and lean on one another and learn from one another, and just be together with folks who understand us….