Living with sarcoidosis presents significant challenges, but no one should have to face them alone. This year’s Sarcoidosis Awareness Month theme, "Facing Sarcoidosis Together," highlights the power of community, support, and advocacy in navigating this complex disease.
Whether you are a patient, caregiver, advocate, or medical professional, we stand stronger when we unite to raise awareness, amplify voices, and push for better treatments. By working together, we can bring hope, understanding, and meaningful change to the 1.2 million people worldwide impacted by sarcoidosis.
Share Your Story
The best way for someone to learn about sarcoidosis is to learn about your experiences. Share your story and guide people to FSR to learn more about how they can support research and our educational programming.
To raise awareness and unite the community during April’s Sarcoidosis Awareness Month, FSR will be hosting a month-long virtual awareness and fundraising challenge! Join us to make a difference!
Attend Events
FSR has put together a variety of educational, wellness, and social engagement programs this month. Connect with other members in the sarcoidosis community, learn from experts, and engage with FSR.
Facing Sarcoidosis Together
Awareness and Fundraising Challenge
Join FSR's Facing Sarcoidosis Together Awareness and Fundraising Challenge! Join us in raising $75,000 to support efforts in accelerating research and patient programming this year! Create a Sarcoidosis Awareness Month fundraising team and invite your friends and family to join you in raising awareness and fundraising throughout the month.
Now through April 30, 2025, don't miss your chance to get an exclusive FSR anniversary bracelet* by donating $25 to our Awareness Month Campaign! Get the toolkit here.
*One bracelet per person
#PostInPurple Social Media Challenge
Join the FSR community and #PostInPurple to show support for sarcoidosis awareness! Share a photos on social media during the month of April with the color purple, the internationally-recognized color for sarcoidosis, to show solidarity for those impacted by this disease. Make sure to tag @stopsarcoidosis and use #PostInPurple, #SarcoidosisAwareness, and #FacingSarcoidosisTogether!
Awareness Events
FSR has a full schedule of events coming up, and plenty of opportunities for learning, connecting and joining with others to raise awareness of sarcoidosis!
Virtual Events:
- All month: Sarcoidosis Awareness Fundraising Challenge
- April 13: World Sarc Day
- Week of April 14: LinkedIn Live for Sarcoidosis Awareness
- April 16: FSR-The Cleveland Clinic Awareness Month Webinar: The Sandra Hodge Memorial Lecture
- April 17: Accelerating Sarcoidosis Research Together – FSR Grant Awardee Webinar
- April 21-24: Ask the Sarcoidosis Expert on Inspire
- April 22: FSR Physical Therapy Q&A Session
- April 26: Memorial Monday
- June 28-29: FSR 2025 Global Virtual Sarcoidosis Summit
In-person Events:
- April 26: Sarcoidosis Community Awareness Walk - Washington DC Walk on the Mall with Medstar
- April 26: Cleveland Clinic Bowling Event - Independence, OH
- April 27: FSR-GSCA Temple University Walk - Norristown, PA
- April 27: FSR-VCU Sarcoidosis Meet Up - Richmond, VA
FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) Community Group Events
- April 14: FSR-GSCA Sarcoidosis Community Group of DC at Medstar Hospital meeting
- April 16: Community Group of Tampa at Tampa General meeting
- April 22: University of Kentucky - April Sarcoidosis Awareness Month – Ask the Expert Webinar
- April 23: FSR-GSCA Community Group of Cleveland Clinic meeting
- April 24: FSR-GSCA Community Group of Philadelphia at Jefferson Health meeting
- April 24: FSR-GSCA Community Group of Denver at National Jewish Health Meeting
- April 24: FSR-GSCA Community Group at the Emory Clinic meeting
Click here to register for a Community Group event near you.
Sarcoidosis Awareness Toolkits
Our social media kit contains graphics and language to share during the month of April to help raise awareness for sarcoidosis! Download the toolkit here.
Download our Sarcoidosis Advocacy and Policy Toolkit and make your voice heard in your community!
For a limited time FSR is selling T-shirts to help raise awareness of sarcoidosis among our community! These soft-style shirts will be on sale through April 21, 2025. Proceeds from this fundraiser will support FSR’s sarcoidosis research and patient support initiatives.
Learn About Sarcoidosis
What is Sarcoidosis? Learn about the symptoms and access the resources.
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- FSR On-Demand Educational Resources. Educational brochures, disability and insurance info, recorded conferences and webinars, and more!
- Find a Clinical Trial: FSR encourages patients to participate in clinical trials, research surveys, and academic studies to help us advance towards a cure.
- Sarcoidosis Diagnosis and Treatment Guidelines. Find the latest guidelines from global sarcoidosis experts and share with your clinicians.
- FSR created a New Patient Roadmap for those newly diagnosed with sarcoidosis. Click here to view and download the flyer.
- Ignore No More: FSR is committed to raising awareness about how sarcoidosis impacts African American women at the highest prevalence and severity. Click here to read our White Paper on Clinical Trials Diversity: Advancing Clinical Trial Equity for Black Patients with Sarcoidosis.
- Talking to Your Doctor About Sarcoidosis: Open communication with your healthcare provider is essential for effectively managing sarcoidosis. Click here to read tips and access MUSC's Sarcoidosis Health Plan Toolkit.
Find Support and Assistance
- FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA): Member program consisting of clinics, hospitals, individual providers, patients, and caregivers committed to finding a cure and offering evidence-based, patient-centric care for those living with sarcoidosis.
- FSR Patient Navigator Program: FSR's Patient Navigator Program provides one-on-one support for those newly diagnosed with sarcoidosis, in the diagnosis process, experiencing their first flare, and/or experiencing a new organ manifestation.
- FSR Sarcoidosis Support Group: FSR has launched an online peer-led support group for individuals who have been living with sarcoidosis for more than six months.
- Provider Directory: FSR is pleased to offer the new Provider Database that can help you find a provider with experience and/or interest in treating people with sarcoidosis. Click here to look for a provider near you.
- FSR Videos: View webinar and live event recordings on our YouTube channel or on the FSR website in our new Video Library!
- Financial Assistance: On our financial resources page, FSR has pulled together a list of Patient Assistance Programs that provide financial assistance for drugs included on FSR’s SAB-approved list of treatment options for sarcoidosis. Visit the FSR website to view a list of assistance medication programs and access our Prescription Assistance Card.
- Inspire Online Community: FSR is proud to partner with Inspire on the online Stop Sarcoidosis Support Community to provide a much-needed space for those living with sarcoidosis to come together and share experiences. Connect with over 70,000 other sarcoidosis patients and caregivers.
- FSR Sarc Fighter Podcast: FSR sarcoidosis advocate, John Carlin, produces a podcast specifically for individuals whose lives are impacted by sarcoidosis. He discusses the big topics that affect sarcoidosis patients and their loved ones from the basics of the disease, lifestyle changes, treatment options, research progress, and most importantly: the voices of those affected by this disease. Listen here.
Thank you to our sponsors for making Awareness Month possible:
