Share Your Experience

For people battling sarcoidosis, deciding what part of your story to share can be hard. This is why we have developed an easy way for you to share your story; answering some short questions. Every month we will change the prompts and give you a new topic to talk about, a different part of your story to tell. We’ll review and compile the responses we receive on each topic and share them in a blog later in the year.

This month we are focusing on sarcoidosis patients experience with doctors and the medical system. Dealing with doctors, getting tests done, and the frustrations of having a rare disease are all part of the reality of living with sarcoidosis. By sharing your story you will be helping other sarcoidosis warriors find new ways to deal with the daily burden of this disease. Patients and caretaker alike are invited to share their input on life with sarcoidosis by answering the questions below.

Name*
Prefix First Last
I am a...*
Email*

This will not be included in your blog post or shared.
Cell Phone*
Your preferred daytime phone number. This will never be shared with others.
Address*
Street Address City State / Province / Region ZIP / Postal Code Country
Birth Year*
If you prefer not to disclose type in N/A
Gender*
Ethnicity*
FSR is interested in knowing more about your ethnicity background as we continue to strive for diversity and inclusion. Please indicate which best describes you (select one):
Preferred Pronouns
Connection to Sarcoidosis:*
How could your doctors be more supportive of you?
What advice do you have for newly diagnosed patients?
Biggest problem you’ve encounter with medical professionals?
What did your doctor tell you about sarcoidosis when you were diagnosed and has it been true to your experience?
By checking this box, you give FSR permission to use this submission or excerpts from it along with your first name and last initial (i.e. John D.) on our website, social media, eNewsletter and other communications.*
- I give FSR permission to use this submission and my name.

Share Your Experience

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