FSR Global Virtual Sarcoidosis Summit
Find Your Community, Find Your Life
For Patients, Loved Ones, and Supporters
Registration for this event is now closed
Friday, November 3, 2023 - Sunday, November 5, 2023
Friday; 4:00 pm – 5:30 pm CT (5:00 pm - 6:30 pm ET).
Saturday & Sunday; 9:00 am - 5:00 pm CT (10:00 am - 6:00 pm ET)
The sarcoidosis journey is an uncertain one and, at times, can feel lonely and isolating. However, it is possible to find a community of people who relate and understand what you’re going through. Join us for this year's FSR Global Sarcoidosis Summit (For Patients, Loved Ones, and Supporters) and begin building or adding to your community.
This event will provide the opportunity to learn and have your questions directly answered by world renowned experts. You will learn how to build stronger relationships with your providers and care teams as you grow your medical support community.
Whether you are living with sarcoidosis or supporting someone who is, this summit is for you. You will also have opportunities to meet, share stories, and learn from others who are on a similar journey through our extensive virtual community discussion forums, networking events, and chat tools. You will make lasting relationships with other sarcoidosis warriors and loved ones, such as yourself, and create a village of friends who truly understand what you are going through and who can provide advice and support for you throughout your journey.
"I have never gotten so much valuable information about this disease."
- 2022 Summit Attendee
We aim to support you along your journey by providing you an opportunity to “Find your community. Find your Life.”
If you have joined us for past virtual summits, you will be pleased to know that we will continue to use the same user-friendly platform designed to promote interaction, engagement, and networking.
If this is your first time joining the virtual summit, rest assured that the platform will make it easy for you to create connections, find relevant sessions, and build your community.
We want everyone to feel comfortable and be ready to make the most of this event, so the virtual “doors” will open four-days before the start of the Summit. Early access allows you to check out sessions in advance, get familiar with the platform, network with other attendees, and visit exhibit booths to obtain vital information from FSR’s sponsors and partners.
Whether you’re new to sarcoidosis or an experienced sarcoidosis warrior or loved one, we’re bringing back our 101 Track topics which are meant for those new to sarcoidosis while providing different topic and discussion opportunities for those who do not wish to participate in the 101 Track topics. Whether this is your first time learning about sarcoidosis or you have attended educational events before, you will find important information and insights in these sarcoidosis expert-led sessions.
Invite your friends and family. Having a community of people with different perspectives allows all of us to learn from each other and lean on each other during the sarcoidosis journey. This event is for anyone who is impacted by sarcoidosis, whether you are living with the disease or love and support someone who is. All are welcome. Together we can improve the lives for all impacted by sarcoidosis.
This interactive kickoff event will be fun way to get this event started. Do you love music? Are you looking for creative outlets? Stay tuned for more information to be released in the upcoming months
Meet Our Summit Session Speakers!
Key Note Speaker
John (Sean) Doyle
Lawyer, Well-Being Consultant, Author of Mud and Dreams: Essays on falling more deeply in love with life.
John Carlin
WSLS 10 News Anchor, FSR Sarc Fighter Podcast host, FSR Patient Advisory Committee Co-Chair
Bill Damsky, MD, PhD
Assistant Professor of Dermatology, Yale School of Medicine
Rachelle DeMaria
Sarcoidosis patient, FSR-GSCA Support Group at Denver-National Jewish Health
Kimberly Dobbs, MD
Division of Pulmonary and Critical Care Medicine, University of Mississippi Medical Center
Rohit Gupta, MBBS, FCCP
Associate Professor, Thoracic Medicine and Surgery, Temple University Hospital
Bernie Williams
New York Yankees Legend, Musician
Cheryl Bradford
Sarcoidosis and Interstitial Lung Disease (ILD) Patient and Advocate
Rayne Rodgers, MPH
Senior Director of Patient Advocacy at Kinevant Sciences
Elizabeth Frame, MD
Adjunct Clinical Associate Professor Medicine, Cedars-Sinai
Jeffrey Gelfand, MD, MAS
Neurologist, UCSF Health
Line Kemeyou, MD
Associate Professor - Heart Failure and Transplant, University of Utah
Chad Kessler, MD, MBA, MPHE
National Director for Emergency Care in VHA
Erica Courtenay-Mann
Philanthropist and FSR Patient Advocate
Daniel Culver, DO
Chair of the Department of Pulmonary Medicine, Cleveland Clinic, Member of FSR Clinical Studies Network
Bobak Akhavan, MD
Pulmonary and Critical Care Faculty at Cedar Sinai Medical Center
Debbie Bates, PhD, MT-BC,
Music Therapy Manager for Arts and Medicine at the Cleveland Clinic
Jordana Kron, MD
Professor of Internal Medicine, Cardiology, VCU Health
Shu-Yi Liao, MD, MPH, ScD
Pulmonologist and Assistant Professor, National Jewish Health
Mary McGowan
Chief Executive Officer, Foundation for Sarcoidosis Research
Courtney Gray Montgomery, PhD
Professor, Genes & Human Disease Research Program, OMRF
Theresa Govan, LPC, Ed.D
Psychotherapist, FSR Patient Advisory Committee
Priya Balakrishnan, MD
Pulmonary Specialist, Respiratory Institute of Cleveland Clinic, OH
Sheiphali Gandhi, MD, MPH
Assistant Professor, Divisions of Occupational, Environmental, and Climate Medicine and Pulmonary, Critical Care, Sleep, and Allergy Medicine, University of California - San Francisco
Helene M. Langevin, MD
Director of the National Center for Complementary and Integrative Health (NCCIH) at the National Institutes of Health (NIH).
Mehdi Mirsaeidi, MD, MPH
Critical Care Medicine Physician, Pulmonologist, UF Health-Jacksonville
Louise M. Perkins, PhD
President of FSR Board of Directors, Chief Science Officer Emerita of Melanoma Research Alliance
David Prezant, MD
Chief Medical Officer at the Office of Medical Affairs for the Fire Department of the City of New York (FDNY)
Arthur Yee, MD, PhD
Rheumatologist Specialist, Hospital for Special Surgery
Parijat Sen, MD, FCCP
Assistant Professor of Medicine at the University of Kentucky in the Division of Pulmonary and Critical Care
Tricha Shivas, MBe
Chief Strategy Officer, Foundation for Sarcoidosis Research
Mary Beth Scholand, MD
Professor in Pulmonary Medicine, Director of the Interstitial Lung Disease Clinic, University of Utah Health
Sanjay S. Shukla, MD, MS
President and CEO, aTyr Pharma
Jinny Tavee, MD
Neurologist, National Jewish Health
Garrie Farrow
FSR Patient Advisor Council member, Women of Color Patient Advisory Council member, and FSR-GSCA UF Community Outreach Leader
Jessica VanRoo
Executive Chef, Susan Samueli Integrative Health Institute
Unique and Exciting Plenary Sessions
This year's plenary sessions offer fresh, engaging and exciting content:
- New and emerging therapies with guest speakers from Pharmaceutical Partners
- Overcoming Isolation with Chronic Illness - The Power of your Community
-Emotional Wellness: Tolls for coping with stress and anxiety
-Managing chronic illness and relationships
- Ask The Experts: 50 Min Q&A with Sarcoidosis Experts
- Patient Panel Discussion: 50 Min interactive discussion on the importance of a community along your journey
- Panel Discussion: Environmental Factors and Exposure
- Community Meal & Happy Hour
-Overview: Anti-Inflammatory Diet
-Meal Demonstration: Create a meal and break bread as a community
Stimulating Breakout Sessions
Along with our 101 track topics we’re introducing new and innovative though provoking sessions aimed at delivering different ideologies and perspectives.
- Find Your Physician Community
- Lost in Translation: A discussion about communicating with your healthcare team
- Find Your First Responder Community (Military Veterans / Firefighters / Police Officers)
- Environmental Exposures
- Military Veterans/Pact Act
- Alternative Holistic Therapies
- Fatigue & Pain Management
Engaging Networking and Discussion Sessions
We are excited to offer many opportunities for attendee engagement!
- Genetics and Sarcoidosis
- Finding the right treatment to fit your life
- Prednisone and Methotrexate
- Insurance Issues and Barriers: FSR Legislative Activity
- Ability to connect one-on-one with other attendees and exhibitors
- In-system video chatting, and group chat availability
- Open “Coffee Break” area available to drop in throughout the event, staffed by FSR Patient Advocates
- Abundant chat rooms based on topics of interest
- Tailored connections based on your region, and interest in sarcoidosis
The Schedule
Scholarships
Thanks to our amazing donors, we have a limited number of scholarships for patients and their loved ones. Scholarships are meant to reduce the burden of registration costs for those in our community who would not otherwise be able to attend.
Feedback from past Summits
Thank You to Our Summit Sponsors
Platinum Sponsors
Bronze Sponsors
Interactive Community Discussion Sponsor
