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Virtual Patient Education Summit June 12-13, 2021

All the sessions from the summit will be recorded and available for registrants to view through August 13, 2021.

This year we will be offering a unique two-day experience on a fun, interactive new platform.

FSR’s Virtual Summit is a two-day online opportunity for learning, community, and wellness. These events allow sarc warriors from all over to come together from the comfort and safety of their own homes to learn about sarcoidosis-related topics, as well as wellness and support opportunities.

View the Patient Education Summit Schedule 

Date/Time

Session

Full Name and Credentials

Position

Affiliation
Friday evening, June 11th Patient Advocate Kickoff Roundtable      
         
Sat – June 12th        
10:00 AM CST Welcome! Mary McGowan CEO FSR
10:10-11:00 AM CST FSR Iceberg & Knowledgeable Providers Mary McGowan CEO FSR
10:10-11:00 AM CST FSR Iceberg & Knowledgeable Providers Tricha Shivas Vice President of Research and Strategic Partnerships FSR
11:10 AM- 12PM CST Sarcoidosis 101: Pulmonary Lucian Marts, MD Assistant Professor of Medicine – Pulmonary, Critical Care Medicine Emory School of Medicine — Atlanta, Georgia
11:10 AM- 12PM CST Sarcoidosis 101: Pulmonary Adam Anderson, MD Assistant Professor of Medicine – Pulmonary Medicine Washington University School of Medicine — St. Louis, Missouri
11:10 AM- 12PM CST Chronic Sarcoidosis: Pulmonary Andrew Levy, MD Pulmonary Medicine and Critical Care Physician Oregon Clinic — Portland, Oregon
11:10 AM- 12PM CST Overview: Skin Sarcoidosis Misha Rosenbach, MD Associate Professor of Dermatology Penn Medicine — Philadelphia, Pennsylvania
11:10 AM- 12PM CST Overview: Skin Sarcoidosis William Damsky, MD, PhD, FAAD Assistant Professor of Dermatology Yale School of Medicine — New Haven, Connecticut
12:00-1:00 PM CST BREAK – Check out Booths/Chat rooms      
1:00-2:15 PM CST Research & Registry Presentation & Panel Tamara Al-Hakim Research Program Manager FSR
1:00-2:15 PM CST Research & Registry Presentation & Panel Nabeel Hamzah, MD Associate Professor of Internal Medicine — Pulmonary, Critical Care and occupational Medicine University of Iowa Health Care — Iowa City, Iowa
1:00-2:15 PM CST Research & Registry Presentation & Panel Erica Herzog, MD, PhD Professor, Director, Yale Interstitial Lung Disease Center of Excellence Yale School of Medicine — New Haven, Connecticut
1:00-2:15 PM CST Research & Registry Presentation & Panel Daniel Culver, DO Director, Cleveland Clinic Interstitial Lung Disease Program Cleveland Clinic — Cleveland, Ohio
2:15-2:50 PM CST BREAK – Check out Booths/Chat rooms      
2:50-3:40 PM CST Sarcoidosis 101: Cardiac Hima Vidula, MD, MS Associate professor, Department of Medicine, Cardiology University of Rochester Medical Center — Rochester, New York
2:50-3:40 PM CST Chronic Sarcoidosis: Cardiac Justin Vader, MD Assistant Professor of Medicine – Cardiology Washington University School of Medicine — St. Louis, Missouri
2:50-3:40 PM CST Overview: Ocular Sarcoidosis James Rosenbaum, MD Professor of Ophthalmology Oregon Health and Science University — Portland, Oregon
         
3:50-4:30 PM CST Networking Group Chats:  Life stage groups, topics for working age and older      
4:40-4:50 PM CST Closing Louise Perkins, PhD Board President FSR
         
Sun – June 13th        
         
10:00 AM CST Welcome!
Louise Perkins, PhD		 Louise Perkins, PhD Board President FSR
10:10 AM-11:00 AM CST Answering Your Medical Questions Connie Hsia, MD Professor, Internal and Pulmonary Medicine University of Texas Southwestern Medical Center — Dallas, Texas
10:10 AM-11:00 AM CST Answering Your Medical Questions Divya Patel, DO Assistant Professor, Director of Interstitial Lung Disease and Sarcoidosis Program University of Florida Health — Gainesville, Florida
10:10 AM-11:00 AM CST Answering Your Medical Questions Jinny Tavee, MD Chief, Division of Neurology National Jewish Health — Denver, Colorado
11:10 AM -12:00 PM CST FSR Speakers’ Bureau Showcase  Jim Kuhn, Leanne West, Tina Tasker, Cheryl Bradford, Della Washington, Garrie Farrow, Jessica Reid, Mary Morlino, Michael Patterson, Rebecca Stanfel, Sammy Suriani, Tara Sims, Brandi Cleaver, Yvonne James, Rhonda Underhill FSR Speakers Bureau FSR
12-1:00 PM CST Break – Check out booths, networking, chat rooms      
1:10-2:00 PM CST Sarcoidosis 101: Neuro David Clifford, MD Melba and Forest Seay Professor of Clinical Neuropharmacology in Neurology Washington University School of Medicine — St. Louis, Missouri
1:10-2:00 PM CST Chronic Sarcoidosis: Neuro Brandon Moss, MD Staff Neurologist Cleveland Clinic — Cleveland, Ohio
1:10-2:00 PM CST Overview: Fatigue Management Lesley Ann Saketkoo, MD, MPH Associate Professor of Clinical Medicine, Rheumatology Louisiana State University Health — New Orleans, Louisiana
2:10-3:00 PM CST Overview: Other Manifestations Kevin Korenblat, MD Professor of Medicine, Medical Director, Liver Transplantation Washington University School of Medicine — St. Louis, Missouri
2:10-3:00 PM CST Overview: other Manifestations Nadera Sweiss, MD Director, Bernie Mac Sarcoidosis Translational Advanced Research Center University of Illinois Health — Chicago, Illinois
2:10-3:00 PM CST Overview: Treatments and Side Effects Pilar Maria Acosta Lara, MD Assistant Professor of Medicine – Pulmonary, Critical Care Medicine University of Alabama at Birmingham — Birmingham, Alabama
2:10-3:00 PM CST Sarcoidosis, Immunosuppressive Treatments and the COVID-19 Vaccine Matthew C. Baker, MD, MS Clinical Chief in Division of Immunology and Rheumatology, Co-Director Sarcoidosis Program Stanford University — Palo Alto, California
3:00-3:30 PM CST BREAK – Check out booths, networking, chat rooms      
3:30-4:20 PM CST Patient Advocate Providers Panel Sammy Suriani, Leslie Serchuk, Jessica Reid, Susan D’Agostino FSR Patient Advocates  
4:30-4:45 PM CST Summit Closing Mary McGowan CEO  

We are excited to share enhancements to this year’s program based on feedback from last year’s conferences:

 

Time in the platform. This year, we will be opening the virtual “doors” four-days before the start of the Summit

Personalized sessions. On this platform, you can choose your sessions during registration, and have your own personalized agenda guiding you inside the system!

Tracks for those new to sarcoidosis (101), and tracks for those who’ve been managing the disease for years (Chronic).

  • We will also be offering more diagnosis-specific content in each track.
  • We are particularly excited about our all-new Plenary Sessions:

 

  • Answering Your Medical Questions: 50 Min Q&A with Sarcoidosis Generalists
  • FSR Perspective & Resources: Learn about what FSR has in the works for 2021-22, as well as how to find a knowledgeable provider, and utilize the FSR-WASOG Centers of Excellence
  • Research Update: Learn about how FSR is supporting and funding research for better treatment and potentially a cure, plus a panel of members from FSR’s Clinical Studies Network discuss the success in Sarcoidosis Research
  • Providers as Patients Panel: This panel of FSR Patient Advocates and Navigators will share their perspectives on being both someone living with sarcoidosis, and a healthcare provider as they tackle big issues like care-coordination, communicating with providers, and more!
  • FSR Speakers Bureau Showcase: The members of our first-ever Speakers Bureau will share their lived experiences as people living with sarcoidosis, or care-partners.

 

Scholarships(accepted until June 6th):

FSR is proud to provide a limited number of scholarships based on need. Scholarship applications will be made available at the same time as Early Bird registration and will end on the last day of regular registration. Please do not register before applying for a scholarship. We will review scholarships on an ongoing basis every three business days until closing, or until all available scholarships have been awarded. We advise those who need a scholarship to apply as soon as possible to ensure the best chance of being awarded a registration.

Learn more and apply!

Thank you to our summit sponsors:

 

 

     

 

           

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Register now!
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